This section is dedicated to recommended reading for an Ehlers-Danlos Syndrome (EDS) patient. Medical and FDA Disclaimers Below.
“Dear Lord, bless those friends of mine who suffer in silence, never wishing to burden others. Give them the strength to keep going. Amen.” -unknown
Contents:
EDS Websites
EDS Books
Researching and Purchasing your books
Holistic Health Books that would be of special importance to an EDS Patient.
EDS Websites
Please start with an area group on Facebook! Search EDS and/or Ehler-Danlos combined with your area. If nothing comes up, try your closest large town or city. WE SUGGEST this because they may have an active “Physicians List” for you. They would be EDS savvy doctors of various backgrounds in the area.
Example:
Virginia EDS/Chiari/Syringo/TC/IIH/POTS Support Group
(and yes, they keep a running physicians list under their about section.)
The EDS Website:
EDS.com
A few websites we like for EDS supplement info.
NCBI:
https://www.ncbi.nlm.nih.gov/pubmed/15607555
Chronicpainpartners.com:
http://www.chronicpainpartners.com/nutritional-therapeutic-strategy-for-ehlers-danlos-syndrome/
Trello:
https://trello.com/b/vJgm2vqj/supplements-for-ehlers-danlos-syndrome-and-related-conditions
EDS Books
(In no particular order)
Researching and Purchasing your books:
- Check out your usual book stop. They can order it in if it is not readily available.
- Most of these books can be found easily on Amazon for a good price, but comparison shopping is recommended. https://www.amazon.com/EDS
- Check out the “reviews” section on Amazon. Usually, the “most helpful review” will have an overview of what’s right and what’s lacking in each book. This can be very helpful when you are trying to decide which book is right for you, whether you shop with Amazon or not.
- Don’t forget your local library!
General Holistic Health Books that would be of special importance to an EDS Patient.
“Heal Your Headache: The 1 2 3 Program for taking charge of your pain.” by David Buchholz, M.D. (of the Johns Hopkins University for Medicine)
“Nature’s Medicine: From asthma to weight gain, from colds to high cholesterol – The most powerful all-natural cures.” by Gale Maleskey and the editors of Prevention Health Books
“Autoimmune: The Cause and The Cure: This book identifies the cause & the cure for: Chronic Fatigue Syndrome, Fibromyalgia, Lupus, Rheumatoid Arthritis, Raynaud’s, Rosacea, Myasthenia Gravis, Hashimoto’s, Type 2 Diabetes, Multiple Sclerosis, Sjogren’s, and more.” by Annasse Brockley and Kristin Urdiales
“Why Does Mommy Hurt?: Helping Children Cope with the Challenges of Having a Caregiver with Chronic Pain, Fibromyalgia, or Autoimmune Disease.” by Elizabeth M. Christ
“How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers.” by Toni Bernhard
“How to Wake Up: A Buddhist-Inspired Guide to Navigating Joy and Sorrow.” by Toni Bernhard
More information on researching and purchasing the products within this website:
About- Tips on Purchasing Your Items
Medical and FDA Disclaimers:
Medical Disclaimer:
Common Sense dictates that the following is now added: Please note that recommended reading and its practicum, product information, physical therapies, and any and all advice presented in this collection is intended for the convenience of the reader. For advice on medical issues you should always consult your local medical practitioner.
FDA Disclaimer:
The products and their practicum shown on this website or discussed in our communications have not been evaluated by the US Food and Drug Administration. These products are not intended to diagnose, treat, cure or prevent any disease. Those seeking treatment for a specific disease should consult a qualified physician.