This section is dedicated to the conditions typical of an EDS patient. These are suggestions from others in the EDS community, as things to be aware of, as your condition develops. Furthermore, which related-conditions you have will depend on the type of EDS you have. There is more on the types of EDS in the resources section.
The Purpose of THIS Section:
Think of this “list” as a guide to help you facilitate decisive, quality communications between you and your physicians. This is a “knowledge is power” section. Firstly, this section could help you think through any new symptoms. And secondly, it can make you feel less “alone.” Medical and FDA Disclaimers Below.
“I don’t understand why
when I need you most you would leave me.”The Lord replied:
“My precious child, I love you and would
never leave you.
During your times of trial and suffering,
when you see only one set of footprints, it was then
that I carried you.” – Footprints in the Sand, by Mary Stevenson
EDS related conditions:
GI Track Dysfunction
Sensitivities to light, sound, smells
Small Fiber Nuropathy
There are a lot of websites about Asperger’s, Autism, and EDS. They are all blogs. Essentially, personal stories, therefore anecdotal. The EDS community sees a clear correlation that should be taken into account.
Bruising is common with EDS due to fragile capillaries and blood vessels.
more info on EDS and bruising:
In extremely over-simplified terms; the brain sits low in the skull and causes neurological problems.
“headaches, usually at the back of the head – these are brought on, or made worse by, exercise, straining, laughing or bending over, neck pain, dizziness and balance problems, numbness or tingling in the arms or legs, blurred vision and involuntary movement of the eyes (nystagmus), swallowing problems, hearing loss and ringing in the ears (tinnitus), feeling sick and vomiting.” – Symptoms of Chiari, http://hypermobility.org/help-advice/chiari-malformation-eds/
There are many reasons an EDS patient would experience depression; chronic pain, the diagnosis of EDS and related conditions, the financial burden, finding quality health services, employment restrictions and disability, and the subsequent family stress.
More on EDS and depression from ehlers danlos.com:
Overly Simplified: The collagen dysfunction (or “stretchy” quality) in an EDS patient can lead to various problems with the GI Track. Specifically, it has been shown to effect the connective tissues and nerves in the GI Track.
EDS and the GI Track:
Typical GI Track problems for an EDS sufferer:
Gastropharesis, typically referred to as delayed gastric emptying.
IBS, Irritable Bowel Syndrome
(POTS) Postural Orthostatic Tachycardia Syndrome:
In extremely over-simplified terms; neurological problems brought on by pooling blood due to malfunction of the “autonomic” nervous systems. Autonomic functions are functions regulated unconsciously; blood vessels, stomach, intestine, liver, kidneys, bladder, heart, digestive gland and so on.
“Dizziness, Lightheartedness, Headaches, Migraines, Cognitive impairments, Sleep abnormalities, Neuropathic pain, Fatigue, Blood pooling in the extremities, Light sensitivity in the eyes, Abdominal pain; Gastroparesis, Rapid gastric emptying, Hypersensitivity of the skin.” – POTS Symptoms, http://standinguptopots.org/learning/pots-symptoms
What is POTS:
Precordial Catch: Pain in the chest or breast. Pulled shoulder often due to dislocation.
Article on collagen in the eye:
MTHFR: methylenetetrahydrofolate reductase gene
Very Over-simplified: A gene disorder that effects the creation of amino acids, the building blocks of proteins.
More information on MTHFR:
Sensitivities to light, sound, smells:
Small Fiber Nuropathy:
NCBI: very detailed
Little easier to understand: very informative, but understandable
More information on researching and purchasing the products within this website:
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Medical and FDA Disclaimers:
Common Sense dictates that the following is now added: Please note that recommended reading and its practicum, product information, physical therapies, and any and all advice presented in this collection is intended for the convenience of the reader. For advice on medical issues you should always consult your local medical practitioner.
The products and their practicum shown on this website or discussed in our communications have not been evaluated by the US Food and Drug Administration. These products are not intended to diagnose, treat, cure or prevent any disease. Those seeking treatment for a specific disease should consult a qualified physician.